Community groups
Community groups
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- Funeral Directors: Affordable Funerals
- Leukaemia & Blood Cancer NZ
- Nga Kakano Kaumatua
- Parkinsons Group: Katikati
- Rotary Club Papamoa
- Te Ahunga Whānau
- Waipuna Hospice
- Whakatane Stroke Club
Funeral Directors: Affordable Funerals
Many passionate people and Iwi members from across the North, South, East & West attended this workshop. The new enterprise is being set up by Te Kokoru Manaakitanga: Eastern Bay Villages, a collective of seniors and pakeke finding ways to support one another as they age.
The professional and personal expertises occupying a shared space, was met with great humility when Advance Care Planning was asked to share. I remember feeling deafened by the silence yet engaged by the intense attention held by the audience. I spent time talking with the friends I had made at this workshop, who were willing to share their experiences with me. What a privileged space!
Leukaemia & Blood Cancer NZ
We started the meeting with a round table introduction. Many of the individuals introduced themselves according to their conditions. They knew everything there was to know about the different kinds of cancers and various treatments, They spoke about ‘what a good day looks like’ & ‘what not so good days look like.’ Many had not heard about Advance Care Planning yet many had experiences that aligned to the purpose of having an ACP.
Contact: Rochelle Mills
Leukaemia.org.nz
0800151015 ext. 9229
Nga Kakano Kaumatua
Today I was very much aware of the wairua presence of everyone and there is always one person who stands. It was the way she swallowed, how she wiped her eyes, the way she bowed her head, how she looked at me. Within seconds I found myself struggling to hold back the tears, tame my emotion, and maintain composture. Unashamedly I was unexpectedly triggered and it was ok. It was ok because the pakeke said so – their wisdom in wairua spaces is calming and beyond healing. The same can be said about ACP conversations as we can reap the benefits after the fact.
Contact: Berna Moke
B.Moke@ngakakano.org.nz
Parkinsons Group: Katikati
I was informed it would be a small group, but people turned up in numbers. Katikati Educational held by Parkinson’s are hosted by ‘Summerset by the Sea,’ a beautiful village with lots of activity, modern cafes and stylish décor. But this setting didn't compare to the number of interested parties who came for the ACP discussions and presentation.
Parkinson’s New Zealand (PNZCT) is a charitable trust which provides information, education and support for all people with Parkinson's, including their caregivers, friends, and families. The team of nurses and community educators deliver individualised care, including home visits as well as support groups, here clients can share coping strategies and experiences about Parkinson's while establishing social connections with each other. Additional activities may also include a variety of exercise groups.
Contact: Liz Rapley-Jones (RN), Parkinson’s Nurse
liz.rapley-jones@parkinsons.org.nz
Phone: 021 844 566
Rotary Club Papamoa
Oh, what a night! The Papamoa Rotary Club celebrate their Changeover Dinner with flare, hiding behind masked faces and vintage attire. The scene was set for great conversations, story sharing and a creative award evening. This year the club’s theme focuses on health: of the community, and the club. Advance Care Planning was invited to take a place at the dinner table to share and speak. There are moments when you talk or present ACP and it really is like a box of chocolates, you never know how people are going to respond to such a sensitive, yet important, topic.
Contact: Vivian Edgar, President
0275495379
vivian@vledgar.nz
Te Ahunga Whānau
Advance Care Planning had the privilege of meeting with ‘wāhine toa’ who take a holistic approach to achieving well-being for patients/ whānau living with long term conditions recognising they have their own aspirations.
One of the questions asked was “How do we know in the community that that the DHB has received an ACP?” A very good question! Everyone person who uploads an ACP into the DHB will receive a letter of acknowledgment confirming their plan is uploaded and available. It will be activated by a hospital admission and made accessible to staff to be guided by your wishes.
Contact: Tamar Courtney (RN), Project Lead Nurse
tamarc@wboppho.org.nz
Phone: 07 5713190
Waipuna Hospice
Waipuna Hospice runs independent courses for the community including Fundamentals of Palliative Care. Advance Care Planning attends these sessions throughout the year and at each session new groups of health professionals make an appearance. This group spans across the community. Some have heard about ACP while others have not. Many ask questions about situations that are applicable to their area of work. Today the question was about Advance Directives. “Does an advance directive be given verbally?” The answer is yes. Advance directives can be acted upon if they have been given verbally, they don’t have to be written.
Contact: Anthea Bryant (RN), Nurse Educator
Phone: 07 552 4380 ext. 206
Whakatane Stroke Club
Saturday morning presentations are often smooth sailing until you forget the laptop charger! It only takes a welcoming smile, open arms and food served at the tables to make you feel confident to present without the bells and whistles. The Whakatāne Stroke Club turned up in their numbers to hear a “more personal delivery”, of Advance Care Planning. The Club members themselves are stroke survivors but make no mistake, their sprightly behavior and forward thinking leaves no question untouchable. They meet once a month and welcome new friendships, there is no reason to feel alone.
Contact: Lynne Pask
Pask.lynne65@ gmail.com
0211594005